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Uk News Mar 23, 2026

Scotland Leads UK with Newborn Screening for Spinal Muscular Atrophy

Scotland has become the first part of the UK to introduce newborn screening for spinal muscular atr…
Scotland has taken a significant step in the early detection and treatment of spinal muscular atrophy (SMA), a rare genetic condition that causes progressive muscle wastage, by becoming the first part of the UK to screen newborn babies for the condition.The screening, which is part of the existing heel prick test offered to all parents in Scotland about four days after birth, is funded by the Scottish government and pharmaceutical company Novartis. The goal is to assess how well screening can detect SMA earlier, allowing babies to receive treatment as soon as possible.SMA affects an estimated 1 in 14,000 births worldwide and impacts movement, breathing, and swallowing. Without treatment, it can limit life expectancy to two years. The condition was brought to wider attention after former Little Mix singer Jesy Nelson revealed in January that her twin daughters had been diagnosed with SMA.Campaigners, who have long advocated for newborn testing, hope the Scottish pilot will result in approval for the heel prick test across the UK. Giles Lomax, chief executive of SMA UK, said the screening pilot in Scotland would be “a huge impetus for other parts of the UK to speed up their own testing plans”. He hopes the Scotland trial will provide data that would convince the UK National Screening Committee to approve UK-wide testing.There is no cure for SMA, but there are now three NHS-funded drug treatments available. Lomax emphasized that with these treatments and newborn screening, “the future for anyone diagnosed with SMA is very different compared to their peers who were diagnosed symptomatically. It basically gives children the life they deserve.”
#sma #scotland #babies
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World Economy Mar 22, 2026

Palantir Secures Access to Sensitive UK Financial Data in FCA Deal

Palantir, a US AI company co-founded by Peter Thiel, has been awarded a contract by the Financial C…
Palantir, a Miami-based company backed by billionaire Peter Thiel, has secured a three-month trial contract with the Financial Conduct Authority (FCA) to analyze a vast amount of sensitive UK financial regulation data. The deal, worth over £30,000 per week, aims to help the FCA tackle financial crimes such as fraud, money laundering, and insider trading.The FCA has awarded Palantir the contract to investigate its internal intelligence data, which includes highly sensitive case intelligence files, information on problem firms, and reports from lenders about proven and suspected frauds. Palantir will apply its AI system, known as Foundry, to huge quantities of information held by the watchdog, including recordings of phone calls, emails, and social media posts.The contract has raised concerns about privacy and the company's ethical reliability. One source expressed concerns that Palantir may share the information it learns from the FCA with other parties. Palantir's technology is used by the Israeli military and in the US president's ICE immigration crackdown, leading to criticism from left-wing MPs.The FCA has stated that it has strict controls in place to ensure data is protected and that Palantir will only act on instruction from the regulator. The data will be hosted and stored solely in the UK, and Palantir will have to destroy the data after completion of the contract.Experts have highlighted the potential benefits of using AI to tackle financial crimes, but also emphasized the need for robust protocols to protect sensitive information. Prof Michael Levi, an expert in money laundering, noted that AI is a potentially valuable technology to tackle financial crimes, but also raised concerns about the ownership and control of the data.
#data #palantir #fca
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Music Mar 20, 2026

Huw Marc Bennett's Heol Las: A Cosmic Fusion of Welsh Folk and Global Sounds

Huw Marc Bennett's album Heol Las blends traditional Welsh folk with global influences, creating a …
Huw Marc Bennett's third album, Heol Las (Blue Street), takes traditional tunes from Glamorgan and submerges them in languid arrangements, touched by global influences and woozy doses of surf rock and sitar. The album thrums with a fitting beauty and energy, as it drifts from the industrial valleys to the Gower peninsula.The album features synthesiser-driven tracks such as Cân Gwasael (Wassail Song) and Yr Abaty (The Abbey), which sound like lost library-music theme tunes for spooky children's TV dramas. Other tracks, such as Y Fedwen (The Birch), are like sparkling radio-friendly nuggets of lost Sain Records psychedelia.Bennett's album also explores themes of Welsh heritage and identity, with Angela Christofilou adding lyrics inspired by Bennett's nieces being the first generation in his family to experience Welsh-medium education. The album is a revitalising and revelatory blend of Wales's past and future.Other notable albums out this month include Joshua Burnside's It's Not Going to Be Okay, Akkajee's Pölynkerääjä (The Dust Collector), and the Weaving's Dlúth & Inneach (Warp & Weft).
#bennett #album #like
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Global Development Mar 19, 2026

Tanzania Court Quashes Woman's Death Sentence After Over a Decade on Death Row

A Tanzanian court has quashed the conviction and death sentence of Lemi Limbu, a woman with severe …
Lemi Limbu, a woman with severe intellectual disabilities in Tanzania, has had her conviction and death sentence quashed after spending more than a decade in prison awaiting execution. Limbu, now in her early 30s, was convicted of the murder of her daughter in 2015.On 4 March, a court in Shinyanga, northern Tanzania, declared she can appeal. She will face a retrial, but a date has yet to be set. Lawyers and activists have condemned her sentence, saying she should not be in prison at all. Limbu, who remains incarcerated, is a survivor of brutal and repeated sexual and domestic violence and has the developmental age of a child.Under Tanzanian and international law, Limbu should not be held criminally liable, given her intellectual disability. “She was not supposed to be in prison in the first place,” said Anna Henga, executive director of Legal and Human Rights Centre, a Tanzanian human rights advocacy organisation.At her first trial, Limbu pleaded not guilty. Unable to read or write, she said she did not know the contents of a statement that police claimed she had made admitting to the murder. Her original conviction in 2015 was nullified in 2019 due to procedural errors. In 2022, she was retried and sentenced to death a second time.The court did not allow evidence to be heard from medical professionals about her intellectual disabilities or history of abuse. A clinical psychologist who evaluated her had concluded she had a severe intellectual disability and the developmental age of a 10-year-old child or younger.A coalition of 24 African and international human rights groups last year condemned Limbu’s sentence as part of an appeal to the African court on human and peoples’ rights to look at the plight of women on death row throughout Africa. In Tanzania, the death penalty is the mandatory sentence for murder, although no executions have been carried out since 1995.
#she #her #limbu
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